No two Alzheimer’s stories are ever alike. This stark truth is not entirely comforting in the face of such a distressing disease. While some Alzheimer’s victims (and their caregivers) could relate parallel symptoms or comparable experiences, there is no blueprint for how the disease will unfold. The best thing you can do from wherever you stand on the Alzheimer’s timeline is to breathe deeply, let go of all expectations, arm yourself with knowledge, and plug in to as many resources as you can find.
Lucky for you, we’ve done some of your homework for you. Here’s a list of compassionate and helpful Twitter users who provide information about Alzheimer’s and loving someone affected by the disease.
http://twitter.com/AlzheimersRead - With its multitude of followers, the Alzheimer’s Reading Room is your own personal Alzheimer’s library.
http://twitter.com/melabev – Based in Israel, Melabev touts itself as a leader in Alzheimer care and certainly has many informative tweets to prove it.

http://twitter.com/SternNursing – When you’re dealing with a difficult disease that often renders its victims unable to communicate, a patient advocate, LPN, and geriatric care manager like Lisa Ann Stern is a huge help.
http://twitter.com/LyndaCanas - Texas-based Lynda Canas calls herself “chief cook and bottle washer,” but she’s also an Alzheimer’s expert.
http://twitter.com/nanonavi - Wandering is a major issue for persons with dementia. Check this site for latest nano-device to keep track, virtually, of the one(s) you love.
http://twitter.com/bethpo - Beth Parker-O’Brien is a clinical social worker and researcher who spends a great deal of her time studying Alzheimer’s and related dementias, and other issues facing older adults. And she shares her findings on Twitter!
http://twitter.com/AD_Research - An offshoot of the American Health Assistance Foundation, AD Research is great source for the prevention tips, coping strategies, or other news from the Alzheimer research front.
http://twitter.com/dearkaty - A home care advisor from the San Francisco Bay Area, Katy can arrange the specialized care that someone with an Alzheimer’s or dementia diagnosis needs.

http://twitter.com/AlzheimersTips - The play-by-play guide to Alzheimer’s caregiving from Coach Frank Broyles is top of the line. When the full-court press is on, the playbook gives you practical tips, right at your fingertips.
http://twitter.com/dwayneclark – Dwayne Clark may be the CEO of Aegis Living (a corporation of 34 senior living communities in Washington, California and Nevada), but his Journey with Mom – My Mother, My Son blog is a deeply personal look at how Alzheimer’s has affected his mother and consequently, Dwayne and his family.
https://twitter.com/deannalueckeno6 - Author Deanna Lueckenotte has worked for a decade to educate those in communities/health care settings about Alzheimer’s and dementia. Check out her Alzheimer’s Days Gone By blog.
http://twitter.com/alan_arnette – Alan’s mother, Ida, died of Alzheimer’s in 2009. A passionate advocate and a speaker on the subject, Mr. Arnette is also a mountaineer who is climbing a mountain of a cause: seeking to raise $1 million for research toward a cure.

http://twitter.com/CureAlzheimers - The folks at the non-profit Cure Alzheimer’s Fund are focused like a laser beam on breakthroughs in Alzheimer research. Even better? They keep followers on top of the latest news.
http://twitter.com/alzassociation – As the premier voluntary health organization committed to Alzheimer care, support, and research, look no further than the Alzheimer’s Association for every step of the journey. The 24-7, 365 days a year toll-free helpline (available in 120+ languages) is a lifeline for caregivers, those diagnosed, and anyone who wants to know more about the A word.
http://twitter.com/alzfdn – The Alzheimer’s Foundation is a leading non-profit dedicated to providing resources for Alzheimer caregivers via advocacy, education and professional development.
http://twitter.com/silveralert – Florida is one of many states joining a national movement towards passage of legislation for Silver Alert systems, akin to an Amber Alert, to help locate those with cognitive impairments who are lost or missing.
http://twitter.com/FisherCenter - A strong research focus distinguishes this powerhouse Alzheimer’s information site… lots of good stuff minus the fluff here.
http://twitter.com/AlzheimersInfo – Spot-on tweets on Alzheimer’s care is the calling card for this site.
http://twitter.com/BannerAlzheimer – West Coast-based Banner Health Systems sponsors the Banner Alzheimer’s Institute (located in Phoenix), where a memory-disorders clinic, memory screenings, and support groups are among the top-notch menu of services offered to community caregivers and their loved ones.
http://twitter.com/alzrestrust – They may be physically located across the pond in Cambridge, U.K., but this leading research charity for dementia with its relevant resources are easily accessed on the world wide web. It’s a small world after all.
http://twitter.com/Neuro_Support - Another U.K.-based site, Neurosupport is a great place to find info on the full spectrum of neurological conditions.
http://twitter.com/alzheimerssoc – Northern Ireland, Wales, and England join forces in the fight against dementia at this Twitter site.
http://twitter.com/AlzSociety – Look to the North, where our fellow Canadians at the Alzheimer’s Society are “working for a world without Alzheimer’s disease.”
http://twitter.com/AlzServices – Alzheimer’s Services makes its home in Baton Rouge, Louisiana, where their mission is helping people in their 10-parish coverage area cope with this challenging disease.
http://twitter.com/AAQIUpdate – The Alzheimer’s Art Quilt Initiative is a truly unique fundraising and awareness effort. Fifty-two stunning art quilts express via texture, color, fabric, shapes and patterns the dynamic experience that Alzheimer’s is. Whether you purchase a quilt or a book with photos of the unparalleled collection, or if you visit the exhibit and see these works of art live, proceeds go towards Alzheimer’s research.
http://twitter.com/fordementia – In London, Admiral Nurses have served those with dementia and their “carers” since 1990. This special cadre of nurses, who work within the National Health Service, provide thoroughly comprehensive practical and emotional support from day one of the diagnosis all the way through the stages of grief.
http://twitter.com/ArtsDementia – The brains behind this Canadian-based program – defined as “an interdisciplinary forum for creative expression in dementia care” – are all about maintaining dignity post-diagnosis.
http://twitter.com/Dementiadays – This self-described dementia patient shares glimpses of daily life with dementia and Parkinson’s.
http://twitter.com/AlzSpks – Lori LaBey is a self-described Alzheimer’s “advocate on steroids;” her mother is currently in the final stages of the disease. A trainer, blogger, author and speaker, Lori believes that sharing knowledge and experiences is one way to fight back against the Alzheimer’s disease monster.

http://twitter.com/HadleyHopeFund - A rare form of Alzheimer’s known as Niemann-Pick Type C can actually affect children. Oregon-based Shannon D. Jones wants to accelerate ethical research to find a cure.
http://twitter.com/alzIllinois – The Greater Illinois Chapter of the Alzheimer’s Association is doing great things in their home state – and on the web – to increase Alzheimer’s awareness and connect people to their much-needed services.
http://twitter.com/Alzheimersline – Ever wish you could get a second, third or fourth opinion? We probably all would if it was free. At Alzheimer’s Line, it is. This San Francisco-based health care resource offers doctor-reviewed information on Alzheimer’s disease, among others.
http://twitter.com/defortier – Dennis DeFortier, President of Medical Care Corporation, promotes the benefits of dementia risk management and advocates for early intervention against memory loss…all in a day’s work.
http://twitter.com/AlzSociety – Canada made headlines early this year when it hosted the 2010 Winter Olympics – but there is more to Canada than snow and ice. The Alzheimer Society of Canada is working towards a worthy goal: a world without Alzheimer’s.
~Michelle Seitzer
For more helpful Twitter resources:
Senior Caregiving Resources on Twitter With a Lot of Heart
Top Senior & Boomer Blogs & Sites on Twitter